Upcoming Support Group Meetings

 

There are upcoming support group meetings in Alice Springs.

PARKINSONS SUPPORT GROUP:

You’re invited to come along to meet others with Parkinson’s Disease, caring for people with PD or an interest in Parkinson’s. Come along for talks on Parkinson’s medications by a Pharmacist and an Intern Pharmacist, plus a question & answer session. Contact Disability Advocacy Service for more information on 08 8953 1422.

NEXT MEETING:
Date: Thursday 28 February 2019
Time: 6:00pm – 8:00pm
Location: Gillen Club Board Room – 57 Milner Road, Alice Springs
Meeting Flyer: Parkinsons Support Group Meeting 28 Feb 2019

Supported by Disability Advocacy Service Inc.

 

VISION IMPAIRED SUPPORT:

The first Vision Impaired Support Meeting occurred on Friday, 15 February 2019.  If you were interested but couldn’t make it, feel free to contact Carol on 08 8952 3362 or DAS office on 08 8953 1422 for further information.

This is an inaugural get together to assess the needs of Centralians with vision impairment. This could include information about access to services and resources, identifying common needs and how they might be addressed. In future meetings there could be guest speakers, knowledge sharing and general support. We would appreciate hearing from anyone prepared to volunteer their time to assist with transport. For further information, please call Carol on 08 8952 3362 or DAS office on 08 8953 1422.

FIRST MEETING:

Date: 15 February 2019
Time: 10:30 AM
Location: Disability Advocacy Service Office – 4 / 54 Reg Harris Lane, Alice Springs
Meeting Flyer: Vision Impaired Support Meeting 15 Feb 2019
Supported by Disability Advocacy Service Inc.

 

 

Centralian Advocate Newspaper – Disability Forum 6 Nov 2018

Support for People with Parkinson’s Disease

Published in Centralian Advocate Newspaper
Tuesday 06 November 2018
By Annie Ernst

Currently there are not many supports for people with Parkinson’s Disease in Alice Springs, and even fewer in remote communities in Central Australia.

Parkinson’s disease is a chronic progressive neurological disorder that most noticeably affects movement. People with Parkinson’s may have tremors or shaking, move slowly, have rigid muscles, or have trouble walking. These are some of the more common motor symptoms although there are others such as freezing (when your feet feel glued to the floor or you find yourself unable to initiate movement), slumped posture, balance problems and loss of facial expressions.

Non-motor symptoms which can occur include sleep difficulties, softer voice, swallowing difficulties, reduced sense of smell, bowel and bladder changes, cognitive changes, anxiety and depression.

Parkinson’s is a very individual disease and each person who has Parkinson’s will experience different symptoms to varying degrees, and affecting different parts of their body. For example, one family member with Parkinson’s could experience a tremor in their right hand, but few other movement symptoms, while another may experience symptoms such as tremors, muscle rigidity and difficulty walking. Parkinson’s is very different for each person and so is the progress of the disease.

Although Parkinson’s is commonly thought of as a disease that affects older people, it can affect people of any age. Actor Michael J Fox was diagnosed with Parkinson’s at the age of 29. Young people with Parkinson’s will often have additional considerations to those who are diagnosed later in life, such as how the disease affects their careers or parenting. Navigating issues such as how to maintain your livelihood and independence are frustrating at any age, but are acute for younger people with Parkinson’s. For people young and old, it can be lonely – and sometimes scary.

If you are someone with Parkinson’s, you have probably gone through many emotions both before and after diagnosis – from grief and anger, to relief at having a diagnosis, and concern about what this means. Although the disease is experienced differently, it can help to talk to other people who have a diagnosis of Parkinson’s are facing similar challenges and uncertainties.

Currently there isn’t a Parkinson’s Disease Support Group in Alice Springs although there are many of us in town and in communities throughout Central Australia who have Parkinson’s. Support groups can provide reassurance that you’re not alone and give you a safe and supportive environment to share your feelings, learn from and help others, and gain coping strategies to enhance your quality of life.

If you or someone you know and care about has Parkinson’s, or if you’re a health professional with an interest in Parkinson’s Disease, please come along to an initial meeting to gauge interest in setting up a Parkinson’s Support Group at the Disability Advocacy Service (DAS) at 4/54 Reg Harris Lane, Alice Springs at 5pm on Thursday 22 November. For further information, or to let us know that you’re coming along, please telephone 8953 1422.

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