Centralian Advocate Newspaper – Disability Forum 23 Oct 2018

Mayoral Awards Now Open

Published in Centralian Advocate Newspaper
Tuesday 23 October 2018
By Annie & Sarah Ernst

The 2018 Alice Springs Mayoral Awards are now open, until 5pm on Wednesday 15 November 2018. Presentations will take place on 3 December, to coincide with the International Day of Persons with Disability (IDPwD). People with and without disability are encouraged to nominate.

IDPwD is a day to promote understanding and support for rights, well-being and dignity for all persons with disability. The importance of embedding universal access across every aspect of political, social, economic and cultural life is a key focus of IDPwD and submissions that nominate people who support this aim are particularly encouraged.

Categories are:
1. The Noteworthy Award, for ‘A person with disability who has made a noteworthy contribution to the community’.
2. The Champion Award, for ‘A person with or without disability who has been an advocate for the rights and well-being of people with disability’

Additionally, the Michele Castagna Medal, will be awarded to one applicant across the two categories. The award is to recognise an individual that displays tenacity of service to people with disability.

Michele Castagna OAM was a highly respected leader and tireless advocate for people with disability. She was integral to establishing the Mayoral Awards and a determined advocate on Council’s Access Advisory Committee for 20 years. For many years, she also served at different times on the board of the Disability Advocacy Service (DAS) and also spent time as the Manager of DAS. The Michele Castagna Medal was created in her honour after her passing in 2016.

The Mayoral Awards recognise people in our community who work hard to make a difference. This should be demonstrated either by actions in the way they live their own lives, or through commitments and actions for others. Past award recipients in 2017 were Royston Thompson (Noteworthy Award), Tiffany Keane (Champion Award), and Karen Stewart (Michele Castagna Medal). All previous winners are listed on the Alice Springs Town Council website.

To nominate somebody for an award, there are several options, both assisted and unassisted. Forms are available on the Alice Springs Town Council Website. DAS can also print out forms upon request and provide assistance in completing award submissions if required. DAS can be found at 4/54 Reg Harris Lane or contacted on 8953 1422 from 9:00am – 4:30pm Monday to Friday.
DAS offers a free, confidential advocacy service to persons and families with a disability, supporting and empowering clients to exercise their own rights in accordance with the NT Disability Advocacy Standards. In everything DAS does, it seeks to create an inclusive community that recognises, respects, and provides equitable access for persons with a disability.

To get involved in IDPwD, visit their website at www.idpwd.com.au and don’t forget to join in the celebrations on 3 December! More details will be published in this column closer to IDPwD.
For more information about the Mayoral Awards, contact Alice Springs Town Council on 08 8950 0500 or at [email protected] Information packs and nomination forms can be downloaded from the Alice Springs Town Council website – http://www.alicesprings.nt.gov.au/events/mayoral-awards

Centralian Advocate Newspaper – Disability Forum 9 Oct 2018

Published in Centralian Advocate Newspaper
Tuesday 9 October 2018
By Valerie Dearman, Disability Advocacy Service CEO

Disability Advocacy Service (DAS) is an organisation that supports people to navigate the systems that provide services for people with disability. We inform of rights and respond to concerns that a person may have about their care plans. We can also help people through the process of reviews of NDIS plans and appeals.

However the best person to advocate for what they might need is themselves – this is called self advocacy. A number of skills are needed to be able to do this including confidence, communication, and sometimes a lot of resilience. It can also take a change in the way we think.

Well-meaning support workers, friends, family and care-givers might feel the need to “take over”: this can also happen in service meetings where the person with a disability might be in the room, but the talk goes all round. Decisions can be made by others and the only contribution the person at the centre of it all is, simply asked “Are you OK with all of that?”

The person has not been able to participate and there are quite often assumptions made.

So lets change the thinking about enabling people to have a say for themselves. Self advocacy starts with knowing what it is that you want, being able to communicate that to others and being heard. That in turn means that as receivers of that communication we need to really listen to what is being said, and not make assumptions or assessments based on previous experiences on provision of services or known understandings of the person. People are not static robots, we all change our minds, develop new interests as we mature and develop new opinions and ideas.
Being able to speak out about the way you want to live your life is a right we all have, we need to listen to people to support them to grow in confidence to be able to say what they think and to give them the opportunity to advocate for themselves.

DAS is supporting people to learn more about self-advocacy in association with Mental Health Association of Central Australia (MHACA) for clients and workers. Then we will be rolling it out to workers in other organisations, and we would like to offer training to people who would like to support people in self advocacy.

We have just employed a Trainer -Vanessa – to help in this training so please feel free to contact DAS if you would like more information.

We will also be contacting our clients and their family and friends to help us set up an advisory body called the Friends of DAS to work with us on developing our services and in particular to monitor the self advocacy initiatives that are happening.

DAS is looking for someone that can assist with learning Australian Sign Language (AUSLAN). There are a number of clients of DAS who could benefit from AUSLAN support, and DAS staff are also interested in learning. If you know anyone who could support us in this, please make contact with us at the DAS office in Reg Harris Lane.

We would also like to congratulate Bindi on their 40th birthday – great birthday bash! Well done everyone – we all enjoyed ourselves.

Centralian Advocate Newspaper – Disability Forum 25 Sept 2018

“You don’t have to become their best friend; Just slow down and ask, ‘Can I help you with that?’”

Published in Centralian Advocate Newspaper
Tuesday 25 Sept 2018
By Pat Pate

I recently turned 88 years of age, and I have been disabled-but-mobile for 11 years. (Multiple spine injuries acquired over many years.)
To be disabled and old does not mean that you have automatically stopped using your brain, although this seems to be a widely-held assumption, I think.
Thanks to those complete strangers who stop and say, “Can I help you?” / “Are you okay?” in car parks and stores. Even the very heavy doors in some business venues can present a problem.
Thank you to Jemima, Cancer Council, for asking me to assist on two “Daffodil Days” stalls recently; an enjoyable time, good company and a very good cause. I do not think that my lack of mobility was any deterrent to the day.

I’d like to share information about some services and equipment which I have found useful:

I am fortunate to have Telecross by Red Cross, who phone me every morning to check on my welfare. No charge just choose the time, and frequency of contacts; all volunteers on the phones, easy to arrange, and a “feel-good” start to the day. To learn more information about accessing Telecross, please phone Red Cross on 1300 885 698.
Home Care Services, which provide inexpensive contact on a personal level; I currently have a support worker for 3 and a half hours per week for some shopping and general house cleaning. Other help is available if required. The support worker will contact his/her local office if a situation arises when a client needs emergency assistance. To access in-home support, an Aged Care Assessment is required. To learn more about Aged Care support, contact My Aged Care on 1800 200 422. For Disability In-Home Support Services, contact the National Disability Insurance Scheme on 1800 800 110

Carers NT is an organisation that provides support and resources for anyone who cares for others. Phone Carers NT on 1800 242 636 for any information and assistance.
“Walkers” are a wonderful piece of mobility equipment – mine makes the difference between walking and not and is a major item towards living a reasonable lifestyle. Handy for taking washing out to the line, with a basket for small tools for small jobs and items to be “put away”, some shopping, and sometimes functioning as a carriage for my small dog, Sam!

Centralian Advocate Newspaper – Disability Forum 11 Sept 2018

Better understanding the workplace experiences of those who develop a physical disability in mid-career

Published in Centralian Advocate Newspaper
Tuesday 11 September 2018
By Anna Satharasinghe, Disability Advocate, retired (06.09.2018)

What lies at the heart of disability advocacy? For me, disability advocacy is an art and a science.
Disability advocacy requires both creative action and productive thinking in its work.
Disability Advocacy is a collaborative and guiding process of doing with. And one of the primary
focuses of that collaboration is an individual’s recognition and realisation of their rights.
Once upon a time, I worked as a disability advocate in Alice Springs. Working at Disability
Advocacy Service (DAS) I accumulated a mountain of fabulous, enriching experiences.
The most contagious laughter I’ve ever heard belongs to a woman I worked alongside, while
working at DAS. She is a wife, a mother, a fantastic story teller and she has the genetic condition
Fragile X.

At DAS I had the great experience of developing a rewarding affinity with a man living with
rhabdomyolysis. He would have liked to live Tennant Creek, closer to family in Elliot, but remains
in Alice Springs, and too young to be a resident of the nursing home in which he lives.
Parents often call into DAS. Navigating a too-efficient world for their child who isn’t mainstream can
be perplexing, confusing and exhausting. I admire the tenacity love can possess, and I’ve seen
raw tenacity in these parent’s indefatigable endurance.

At times, I see a world that encroaches on a person’s right to be different without being seen as

Too often prejudice against people with a disability, assumes their lives are bleak, desperate and
final instead of a life worth living full of self-confidence, innovation and independence.
At DAS, however, I also observed pride in people describing their complex situation living life with a
disability. A blind man I developed a rapport with only ever over the phone, described his anxiety
about ever having to leave the house, had a world opened up to him by simply allowing me to
arrange for a Guide Dog instructor to visit him in his own home.

Living and working in Alice Springs, I am frequently challenged to uphold the framework of cultural
safety. I have learnt to scrutinise the power relationships between worker and consumer. As I sat
one day under a Red River Gum, yarning with a woman who has bilateral below knee amputations,
and who must surely be a contender for having the world’s most twinkly eyes, I learnt how to listen.
And the way to listen, is to talk less. Many times since I have recalled this lesson of listening long
and hard first, before asking more questions.

I hope disability advocacy goes some way towards helping others to make new lives and worlds for
themselves. I know DAS will continue to treat people with dignity and about the power people with
disabilities have to stand up and say ‘I have a right to be treated equally to other people’.
I have learnt a great deal about the spirit of survivors working at Disability Advocacy Service, Alice
Springs. I thank the Alice Springs community for this opportunity, and express deep gratitude to my
clients, colleagues and mentors along the way.

Centralian Advocate Newspaper – Disability Forum 28 Aug 2018

Better understanding the workplace experiences of those who develop a physical disability in mid-career

Published in Centralian Advocate Newspaper
Tuesday 28 August 2018
By Annie Ernst, Disability Advocacy Service

If like me you are between the ages of 32 and 50 and you have developed a disability while between these ages, you probably found that it impacted on your employment in some way. Sydney University researchers Paul Williamson and Associate Professor Jennifer Smith-Merry would like to hear from you about the impact that your disability has had on your career. They are conducting a survey entitled the “Onset of Physical Disability Mid-Career” because there is a lot of room for improvement in employment for people with disabilities in Australia and they are trying to identify both strategies that work and where there are gaps. It was widely reported in 2011 that Australia ranked 21st out of the 29 OECD (Organisation for Economic Co-operation and Development) Countries but when I went searching to find a more current statistic I was not successful. So, if things haven’t changed a great deal – there seems to be plenty of scope for progress.
The survey is targeting both people who have continued to work (even if you are not in the same job) and those who are no longer working. I have taken the survey and I need to warn you that some of the questions are confronting and I found that there were at times uncomfortable emotions bubbling to the surface that I had not expected. There are phone numbers included in the survey material for both Lifeline and Beyond Blue should you find it too overwhelming. That said, I found the survey to be worthwhile and very interesting and it certainly helped me to sort out how I felt about my own workplace experiences.

In Paul’s words “Speaking to the people most affected – those who have been able to continue working, and those who have not – provides essential first hand perspectives on the issues facing people with disability at work. These first hand perspectives must be better incorporated into the narrative if real change is to be achieved – change that will see more people with disability do what many take for granted.”

The hope that this survey carries for me is that the more voices that speak up about workplace experiences – both positive and negative – of people with disabilities, the more likely we are to be heard and the more likely there is to be positive change in the future. My goal is to continue working for as long as I am physically able – and that time I know can be extended by some workplace adaptations and understanding.

If you are in the target demographic and would like to participate in the survey, or even if you just want to know a bit more about it, go to: http://sydney.edu.au/health-sciences/cdrp/ Alternatively, if you are unable to access the online survey you can contact the Chief Investigator Paul Williamson by email at [email protected] or by telephone on 0402 974 010. I found Paul very approachable and happy to chat.


Disability Column in Centralian Advocate Newspaper – Disability Forum

Published in the Centralian Advocate Newspaper 14 August 2018
By Val Dearman, Disability Advocacy Service CEO

The Disability Advocacy Service in Alice Springs has been given the opportunity to have a small column to discuss issues for people with disabilities in our community. We would like to offer the forum for others in the disability sector to contribute their thoughts as well.

As Advocates our staff are here to support people as individuals with access to services which could mean anything from giving out information to supporting people to identify and achieve lifestyle changes.

We also value the opinions of families, friends and carers and would welcome their participation in the column. It is a great opportunity to share stories, not only individual ones, but also about other places, research and philosophical musings!

What is defined as a disability? I have taken the following words from the website of Australian Network on Disability, specifically from https://www.and.org.au/pages/what-is-a-disability.html
“There are many different kinds of disability and they can result from accidents, illness or genetic disorders. A disability may affect mobility, ability to learn things, or ability to communicate easily, and some people may have more than one. A disability may be visible or hidden, may be permanent or temporary and may have minimal or substantial impact on a person’s abilities.
Although some people are born with disability, many people acquire disability. For example, a person may acquire a disability through a workplace incident or car accident, or may develop a disability as they age. There is a strong relationship between age and disability; as people grow older…”

We also speak of hidden disabilities meaning that it is not always obvious to others. A disability doesn’t just mean having an obvious physical impairment and society is often quick to judge people who appear different. Expectations on physical abilities can often be prescribed from the view of someone who is young and able, for example community events that do not provide seating or access to disability parking. A particular annoyance is people who use disability parks because they will be “just a minute”. These parks are in a handy place simply because the people who use them have limits to their capacity to walk or use supports like a wheelchair. On a similar note is a lack of chairs in larger shops and some venues in town.

Advocacy is about standing beside someone to support them to voice their own concerns and opinions. We are also planning some training in self-advocacy that will strengthen people to speak up for themselves particularly where support is not readily available.

Disability Advocacy doesn’t just respond to individual advocacy needs, we also take on systemic advocacy – in other words the bigger picture that has an impact on what is happening across community and society and how we as a small NGO might be able to have some influence. This of course means active networking, monitoring new initiatives and policy development.

If you would like to send ideas or would like to discuss issues with me please feel free to contact us at DAS 89531422 or [email protected]

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